Logan

Home / Logan
Logan

At the time of Logan’s birth, we anticipated a healthy baby boy, but quickly realized our baby boy was far from healthy.   At two days old, he was transported to a large children’s hospital after being diagnosed with a rare heart defect known as “Truncus Arteriosis”.

Logan had his first of 3 open heart surgeries at 8 days old.  After further testing, doctors determined his heart defect was associated with a syndrome known as “C.H.A.R.G.E.” syndrome.

Logan is now 4 1/2 years old.   He has undergone 18 surgeries, three of which were open heart surgeries. Logan requires oxygen all the time due to lung disease; left pulmonary hypertension.   Logan eats only through a feeding tube and requires oral suctioning daily.  He has started to crawl around and explore “the world”, but requires assistance to do most everything.