Logan

At the time of Logan’s birth, we anticipated a healthy baby boy, but quickly realized our baby boy was far from healthy.   At two days old, he was transported to a large children’s hospital after being diagnosed with a rare heart defect known as “Truncus Arteriosis”.

Logan had his first of 3 open heart surgeries at 8 days old.  After further testing, doctors determined his heart defect was associated with a syndrome known as “C.H.A.R.G.E.” syndrome.

Logan is now 4 1/2 years old.   He has undergone 18 surgeries, three of which were open heart surgeries. Logan requires oxygen all the time due to lung disease; left pulmonary hypertension.   Logan eats only through a feeding tube and requires oral suctioning daily.  He has started to crawl around and explore “the world”, but requires assistance to do most everything.

Ethan is 15 years old
Logan enjoys:
Reading books